After entering April, my dizziness situation has basically improved. In the past 20 days, I have been trying to recover and adapt to my body.
It’s a long story.
I have always thought it was "epilepsy" and when I took phenytoin, I knew that it was taboo to stop taking the medicine suddenly. If you forget to take the medicine one day, the seizure will worsen. The same is true for pkd. If you persist After taking the medicine for several years, the dosage should be gradually reduced. It takes more than ten days to gradually stop the medicine and observe the reaction.
I originally planned to stick to it for two years and never forget to take the medicine; I would like to see if I can successfully stop taking the medicine after two years.
But something unexpected happened.
After I learned that I had PKD last month, there was an obvious "good thing", which I have mentioned before - that is, the amount of medication I took was greatly reduced. From twice a day, one 100mg phenytoin sodium each time, to once a day. , 50mg each time (use small scissors to cut the 200mg carbamazepine tablet into quarters), but it is completely fine.
But even this small 50mg still caused a slightly obvious feeling of drowsiness, and it seemed that the brain was a little unclear. After observing the reaction for more than ten days, I finally gradually reduced the medication and took it for many days. One piece, one eighth piece, is still cut with scissors.
The so-called one-sixth and one-eighth are actually not necessarily accurate, and the shape of the cut is not very regular; in short, the trend is to maintain less and less. In this way, although there are occasional discomforts, the disease seems to be under control.
My original intention is to find the "maximum amount" that can barely control the disease and minimize side effects.
But something happened early on.
At the beginning of this month, when I was thinking about resuming the update, one afternoon I was making ideas on the scratch paper, scribbling and drawing, and I was very excited; I even forgot to take my medicine that day.
Originally, the time to take carbamazepine was changed to after dinner, which was different from before; it was okay to think about it every day; once I forgot the first day, I would "naturally" forget it the next day.
By the time I realized it, I had already forgotten to take my medicine for three days in a row.
But strangely, the symptoms did not worsen.
It turns out that in order to avoid the side effects of taking the medicine, the process of gradually tapering off the medicine was inadvertently a successful attempt to stop taking the medicine. In this way, it seems that it does not take two years to stop taking the medicine by accident.
It has been more than half a month since I stopped taking the medicine completely, and everything is fine. Even if I feel uncomfortable occasionally, I can basically control it independently.
The reason for this is that the medication was gradually discontinued rather than abruptly. In the past, when I forgot to take the medication, I always took 200mg the day before, and suddenly stopped the next day, which naturally caused serious consequences; but this time I accidentally took the normal limit of the process. , but it is consistent with the original method of weaning off medicine; it is equivalent to an attempt to wean off medicine normally;
Secondly, after learning that I have PKD and not epilepsy, whenever I encounter an attack, my mental pressure is much less, and my subconscious self-control has been greatly strengthened. Through some induction actions I have explored, I can be more powerful. "Sooth" yourself.
Of course, the process of getting used to and adjusting is inevitable.
After not taking the medicine, small (controllable) signs of seizures such as moving, sitting or lying will become very frequent; this requires me to get up, move, answer the phone suddenly when it rings, and have someone call me; stand after eating; or even get up in the morning, Sitting in a chair and occasionally doing stretching exercises on the arches of my feet, etc., I needed to gradually adjust and adapt.
Allow yourself to consciously control your body.
It has been doing better and better recently.
Relax your mind and avoid sudden movements into your subconscious mind; gradually train a "normal" mode of drug withdrawal.
If you need to go out to do things, be flexible and take a little more medicine to be safe.
At present, victory is in sight.
This experience was very emotional.
From a general point of view, in the past two months, the so-called "epilepsy" has not only subverted the cognitive perception, but has even been completely solved, which seems to be a great joy; if I had been told in advance that my "epilepsy" was about to be cured half a year ago
, I would definitely be ecstatic;
The nightmare of "long-term drowsiness" caused by taking medicine for a while, and the fear of being unable to write properly and think properly did not become a reality after all.
However, the update was interrupted for nearly two months, which was not what I wanted, and I still resented it. There are also many things in life that are not what I wanted.
Many times, "skin-cutting pain" seems to be less important than long-term gains and losses; but when it comes to each person's experience, it is difficult to say. It is inevitable to be very regretful and sad.
Logically speaking, after 7 days of stopping the medication, I was almost certain that I would be cured; but this time I did not force my comeback to avoid another mishap; until today, I am convinced that I have indeed "succeeded", and I can finally plan to resume my treatment.